I am very excited about June and July. Let me tell you why. At the end of June, I will be attending the
national spina bifida conference in Florida. I hope that this will be a memorable
experience for my family, and also yours.
If you are able to attend, just send me a note and I would be happy to
try to meet you while we are there. If
you are not able to go to the conference, I hope to be able to take pictures
and post content that brings the conference to you.
Congratulations to Daniel, the winner of our photo essay
contest. I hope everyone takes a moment
to enjoy his slideshow on the homepage.
We will be posting another contest in June that will run through
August. I'm still ironing out details,
but the prize will be a free pair of customized crutches from EveryKid
Mobility.
Our forum needs to grow and become more active. Over the next few weeks I will be appointing
moderators to help answer questions and keep conversations going. If you have posted in the past and were
discouraged at the length of time it took to get a reply, check back with us
again in the near future. We should be
picking up the pace.
Lifestyle Accelerator is running a small ad campaign on
Google. We want to spread the word about
our site and encourage more people to participate in the community. If you see one of our ads, please don't click
on it. That subtracts from the number of
times people are allowed to view our ad.
Since you already know where we are- we need to save the clicks for
newcomers.
Keep sending in articles, content, science news, pictures,
etc. Instead of doing one huge update
every month, I am going to try to continually update things every few
days. We'll keep bigger articles up for
a couple of months, but I hope to add new little tidbits at least every week.
Follow Lifestyle Accelerator on Twitter @spinabifidainfo
Finding
the things you need has never been faster. Information that is
relevant to you- at your fingertips. We've done all the work, so you
can stop wasting your time. Streamline your life with Lifestyle
Accelerator. We cover a variety of topics from health to fashion.
Commentary is provided on current products and events, and Lifestyle
Accelerator will help you connect with the spina bifida community
through forums and blogs. Sit down and browse. Make us your
homepage. We've got what you want. Right here, right now.
Congratulations to Daniel, the winner of our photo essay contest!
Brianah enjoys playing in her sandbox. She is a happy five year old!
Thumbs Up To "Sled Hockey and the Cincinnati Icebreakers"!
"Sled hockey players body-check their disabilities at the door."
This article in The Enquirer features Chris Starrmann- a clerk in Butler County's Clerk of Courts office. Staarmann plays for the Icebreakers, and he has spina bifida.
If you know of someone or something
that deserves a thumbs up for a positive
portrayal of spina bifida or disability in
the media please let us know so we can
feature them in our thumbs up box.
To find out more about clinical studies that are seeking patients with spina bifida, you can view this page from the National Institute of Health. Just choose "spina bifida" as your condition of interest and click "go".
To help fight for portablility of services, sign this petition to keep families off the wait list for Medicaid when they move to a new state. If you qualify for services in one state, you should be able to keep those same services, when available, in your new state of residence.
Accessible Home Design- A Tour of an Accessible Home
